view it in your browser. A Heart Month to Remember. This past #HeartMonth, we amplified stories of resilience, engaged patient advocates, and spread awareness around a disease that affects as many as 11 million Americans each year. The Heart Valve Disease Awareness Day campaign was started to increase recognition of the specific heart valve disease risks and symptoms. Now in its 6th year, we’re proud to be working with over 115+ partners to raise awareness and save lives. Thank you to everyone who helped us promote Heart Valve Disease Awareness Day! Revisit some our favorite Heart Month moments below! This Is Growing Old On February 9th, we sat down with National Caucus and Center on Black Aging president and CEO Karyne Jones to discuss the importance of health equity in combatting valve disease along with the NCBA’s role in raising awareness.  Heart Valve Disease Awareness Day is Officially CommemoratedKentucky Representative, Andy Barr, introduced a House Resolution to commemorate Heart Valve Disease Awareness Day on February 22.  Over 100 Partners Join the Fight Against Valve Disease This year we partnered with over 100 incredible organizations to spread awareness around valve disease, improve detection and treatment, and ultimately save lives. Heart Valve Disease Day Virtual Conference On February 22nd, we hosted our valve disease day virtual conference, engaging researchers, clinicians, patient advocates and organizations in discussion around heart valve disease. Check out our program schedule.  Valve Disease Day Twitter Chat During our annual Twitter chat, we partnered with WebMD and other Valve Disease Day partners to answer questions on the impact of the pandemic on valve disease diagnosis and treatment.To learn more about heart valve disease and how to get involved, visit us at www.valvediseaseday.org/  The Rally for Access Marches On On March 14th, the Alliance joined patient advocates, caregivers, and allied organizations to protest the Medicare draft coverage decision for FDA-approved Alzheimer’s treatments. In a convening outside of the HHS Headquarters, community leaders and patients alike demanded Medicare coverage for Alzheimer’s care, an issue that impacts more than 6 million people living with Alzheimer’s and related dementias. Watch our recap of the Rally for Access here.    The CMS final national coverage determination can be found here. The Alliance-convened Alzheimer’s Disease Policy Task Force comments on the proposed coverage decision can be downloaded here. We’re Encouraging Advocates, Researchers and Clinicians to Talk NERDY The Alliance is currently seeking patient advocates, researchers and clinicians to expand patient engagement in health CER research for our 2022 Talk NERDY to Me program. This program is designed to empower older adults, their family caregivers, clinicians, and health researchers to learn about Patient-Centered Outcomes Research (PCOR) and how to participate in the development and implementation of research that answers the questions that matter most to patients. To learn more about how to get involved in this year’s Talk NERDY trainings, read our pitch sheets for advocates and researchers. Recent News RSC Members Introduce Bill to Ban QALY Metrics from Federal Healthcare Programs The Republican Study Committee, April 28 CMS Coverage Determination Harms Patients, Sets Troublesome Precedent for Access to Future Cures Alliance for Aging Research, April 13The Alliance and Leading National Patient Advocacy Organizations Urge Congress to Pass Key Medicare Drug Affordability Reforms Alliance for Aging Research, March 17 Copyright © 2022, All rights reserved. Our mailing address is: Alliance for Aging Research 1700 K Street NW Suite 740 Washington, DC 20006 |
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