Category Archives: Alzheimer’s Disease and related disorders

“Are doctors recommending hospice too late?” – Futurity.com

pre-hospice

“Despite experiencing symptoms for months before the end of their lives, older adults are spending shorter periods of time in hospice.

“The finding suggests there may be a need for more attention to symptoms and disability for these elderly people—and perhaps earlier hospice admission.

“Researchers looked at information from a study of 562 people, aged 70 and older, who were not disabled when the study began but died over the following 16 years.

“Of these individuals, 244 (43.4 percent) were admitted to hospice during the last year of life. They were slightly older and more likely to have cognitive impairments (problems thinking and making decisions) than older adults who weren’t admitted to hospice.”

Read this article at Futurity.com in its entirety, click here.

Supporting People with Dementia and Their Caregivers in the Community

The Administration on Aging (AoA) within the Administration for Community Living (ACL) commissioned a supplemental issue of Generations through its National Alzheimer’s and Dementia Resource Center (NADRC) in an effort to advance the establishment and enhancement of dementia-capable home and community-based systems. It is titled Supporting People with Dementia and Their Caregivers in the Community. The Generations supplement is comprised of 18 articles authored by experts in a broad range of dementia care and advocacy topics.

This special issue is dedicated to the delivery of information on a range of topics of significance for people living with dementia and their caregivers.  Intended to put dementia care in context, this issue provides insight into evidence-based interventions, person-centered/directed dementia care, underserved and vulnerable populations, and other topics for providing effective home and community-based services.

The Generations publication is FREE.

To learn more about the work that the NADRC is doing, go to www.nadrc.acl.gov

“From Research to Standard Practice: Advancing Proven Programs to Support Family Caregivers of Persons Living with Dementia”

“This report from the AARP Public Policy Institute discusses what is known about effective programs to support family caregivers and emphasizes evidence-based programs for family caregivers of persons living with dementia. Evidence-based programs to help caregiving families are not widely available in communities. This report looks at barriers to scaling up effective programs, such as health care and social services providers’ lack of knowledge about proven caregiver supportive services. Additionally, this report: draws attention to programs that have been shown to improve one or more aspects of the quality of life of family caregivers and can be implemented in local communities; summarizes positive program outcomes; and identifies common characteristics of successful caregiver programs and services. The report provides four recommendations to ensure a broader reach and wider impact for improving the lives of family caregivers and those for whom they care.” – NASUAD Friday Update

advancing proven programs

Click on the graphic above or here to download the report.

 

“A family with an astonishing rate of Alzheimer’s disease may harbor a powerful new gene” – STAT News

Louise Lee photographed in her home in Ellijay, GA.“Louise Lowman Lee, at home in Ellijay, Ga., is a member of the Chastain family, which has an astonishing rate of Alzheimer’s.”

“LLIJAY, Ga. — Louise Lowman Lee remembers stories about her great-grandmother being put in a fenced area in the backyard, so she could wander safely. She watched her mother patiently care for her grandmother, who lost her reason, inhibitions, and ability to care for herself. Then Alzheimer’s disease gradually eroded the brain of her devoted mother, too.

“But when Lee and two of her sisters brought their mother, Mildred Chastain Lowman, to Emory University in Atlanta in 2006, they weren’t thinking about the family tree. They were just looking for the best possible treatment.

“Dr. Allan Levey asked them to come into a conference room with a genetic counselor and other members of his team. “We’ve been waiting for you,” he said.

“‘We were sort of stunned,’ recalled Sherry Dunn, another sister. ‘We were looking at each other like, “What are they talking about?”’

“Levey explained that he had seen other Chastains in his clinic over the years and had begun studying their pattern of Alzheimer’s inheritance.”

Read this STAT News article in its entirety, click here.

“Lititz woman shares her experience of coming to grips with early-onset Alzheimer’s” – Lancaster Online

mary r“Mary Read, who began a supportive social group for people who are in the early stages of Alzheimer’s disease after she received her only early-onset diagnosis, poses with her dog, Princess, in the Lititz home she shares with her husband, George.”

“Mary Read had been a nurse for years, using her extensive training to care for patients in nursing homes and doctors’ offices.

“‘But all of a sudden I was forgetting stuff,’ she says. ‘I didn’t understand what the doctor wanted me to do — and it was stuff I’d been doing and suddenly couldn’t do.’

She had trouble calculating a patient’s height from inches to feet, for example, or she would forget how to spell the doctor’s name.

“It was stress, they thought. Maybe a virus attacking her brain.

“‘I was fired from my job,’ she says. ‘I knew something was wrong.’”

Click here to read this Lancaster Online article in its entirety.

 

 

Memories of Glenn Campbell in the Friday Wrap-Up, August 11, 2017 | a message from the Secretary of Aging

Each week week the Office of the Secretary of Pennsylvania’s Department of Aging releases a Friday newsletter with information relevant to activities, issues and events for older Pennsylvanians and persons with disabilities across the Commonwealth.

In this week’s newsletter, the Secretary remembers Glenn Campbell and points to a Website begun by Campbell’s wife, Kim: “www.CareLiving.org, a website and social movement designed to provide information, inspiration, encouragement, empowerment, and hope to caregivers to care for themselves while caring for others.”

Click here to download the newsletter as a .pdf file. 

 

 

“Alzheimer’s deaths are creeping up in number”

ALZHEIMERS DEATHS(hyacinth empinado / stat)

A news item from today’s STAT: Morning Rounds e-blast: “The death rate from Alzheimer’s disease in the U.S. is creeping up, according to new numbers out from the CDC this morning. There were just over 31 deaths due to Alzheimer’s disease per 100,000 people in the past year, up from 29 the year before. And while that might seem like a small difference, it’s worth noting — the increase translates to thousands more deaths from Alzheimer’s in the past year. CDC officials tell me that the increase might be due in part to increased awareness about the disease and, in turn, increased reporting of Alzheimer’s deaths. – STATNews

“Caregiving Is Hard Enough. Isolation Can Make It Unbearable.” – The New York Times

caregiving isolation.jpgMarcy Sherman-Lewis is the primary caregiver for her husband, Gene Lewis, who has Alzheimer’s.” Credit Christopher Smith for The New York Times

by Paula Spahn

“For years, Marcy Sherman-Lewis went to a beauty salon in St. Joseph, Mo., every few weeks for a haircut and highlights.

“It had become something of an ordeal to prepare her husband, Gene Lewis, for this outing; he has Alzheimer’s disease, at 79, and helping him shower and dress, insert hearing aids and climb into the car was a very slow process.

“But she could no longer leave him at home alone. And once at the salon, ‘he just sat, watched TV, slept — didn’t bother anybody,’ said Ms. Sherman-Lewis, 62. Her stylist kindly trimmed his hair, too.

“Then last month, the salon owner took Ms. Sherman-Lewis aside. ‘Marcy, he makes my other patrons awfully uncomfortable,’ she said.”

Click here to continue reading this article at The New York Times.

“For Dementia Patients, Engagement Can Improve Mood And Quality Of Life” – NPR

dementia engagement“Researchers find that dementia patients who engage in activities such as gathering photographs and talking about family see improvements in their quality of life and are less agitated. – Owen Franken/Getty Images”

by Shirley S. Wang

“In nursing homes and residential facilities around the world, health care workers are increasingly asking dementia patients questions: What are your interests? How do you want to address us? What should we do to celebrate the life of a friend who has passed away?

“The questions are part of an approach to care aimed at giving people with memory loss and other cognitive problems a greater sense of control and independence. At its core is the idea that an individual with dementia should be treated as a whole person and not ‘just’ a patient.

“Scientists sometimes call this approach an ecopsychosocial intervention. The goal is to create environments that better meet patients’ psychological and emotional needs through strategies other than medication.”

Continue reading this article at NPR, click here.

“One Woman’s Slide From Middle Class to Medicaid” – The New York Times

medicare slide“Mike and Marcia Perna at their home in Dedham, Mass. Ms. Perna’s mother, Rita Sherman, died last year at age 94 after a diagnosis of dementia and five and a half years in a nursing home. Credit Erik Jacobs for The New York Times

by Ron Lieber

DEDHAM, Mass. — “A dozen or so years into retirement, Rita Sherman had plenty going for her financially.

“Recently widowed, she had a net worth of roughly $600,000 as of 1998. Her health was excellent, and she dutifully purchased a long-term care insurance policy that would cover three years of nursing home costs should she ever need help. Watching over it all was her daughter, a medical social worker, and her son-in-law, a financial planner.

“By the time she died at the age of 94 last year, however, all of the money was gone after a diagnosis of dementia and five and a half years in a nursing home. Like so many people who never see it coming, she’d gone from being financially comfortable to qualifying for Medicaid.

“This is the same Medicaid that our representatives in Washington are aiming to cut right now.”

Continue reading this article in its entirety at The New York Times.