Category Archives: Alzheimer’s Disease and related disorders

Alzheimer’s Association Delaware Valley Chapter

JUNE is Alzheimer’s & Brain Awareness Month, the official beginning of summer, and the month of our The Longest Day fundraising effort. Another busy month. Take a moment to share our 24/7 Helpline 800.272.3900 with a friend or neighbor or raise awareness of the warning signs (alz.org/10signs). Call today to request a packet of information.

Join us for June offerings below—including special programs. Please consider sharing the information with the families, caregivers and individuals you serve.

10 Warning Signs of Alzheimer’s (Virtual)

In partnership with Ludington Library

Thursday, June 9 |  7 to 8 p.m. — Register

Living with Alzheimer’s for Middle-Stage Caregivers

In partnership with Route 9 Library & Innovation Center

3022 New Castle Avenue | New Castle, DE 19720

Monday, June 13 | 1 to 4 p.m. — Register

Dementia Conversations  

In partnership with Pelican Point

3809 Bayshore Road | N. Cape May, NJ 08204

Tuesday, June 14 |  2 to 3 p.m. — Register

Alzheimer’s Community Forum: Philadelphia, PA (Virtual)

In partnership with Philadelphia Corporation for Aging and Abramson Senior Care

Wednesday, June 15 | 12 to 1:30 p.m. — Register

Healthy Living for Your Brain and Body

In partnership with Bayside Fitness Center

34814 Long Neck Road | Millsboro, DE 19966

Wednesday, June 22 | 11 a.m. to 12 p.m. — Register

Understanding Alzheimer’s and Dementia

In partnership with St. Vincent de Paul Church

5021 Harding Highway | Mays Landing, NJ 08330

Tuesday, June 28 | 1 to 2 p.m. — Register

Understanding Alzheimer’s and Dementia

In partnership with Whitman Library

200 Snyder Avenue | Philadelphia, PA 19148

Tuesday, June 28 | 3:30 to 4:30 p.m. — Register

Managing Money: A Caregiver’s Guide to Finances

In partnership with Woodbridge Place

1191 Rapps Dam Road | Phoenixville, PA 19460

Wednesday, July 20 | 10:00 to 11:00 a.m. — Register

Caregiver Support Groups

Please see the attached listing for an extensive list of virtual, in-person, and conference call support groups available through the Delaware Valley Chapter

SPECIALIZED VIRTUAL Caregiver Support Groups:

Chinese Carers Support Group (Mandarin video conference)

3rd Wednesdays of every month in 2022

(4/20, 5/18, 6/15) from 7:00-8:00 PM (EST)

To register, call 800.272.3900 or email wlhung@alz.org (English/Chinese)

Pataje: Haitian Creole Support Group

Every 3rd Monday of the month from 6:30-7:30 PM (EST)

Virtual via Zoom (phone and video conference options)

Pre-screening required. Call 800.272.3900

Facilitated by: Harner Vaval and Jean Roody Fleuranvil

Spanish Bilingual Support Group

Every 1st Wednesday of the month from 6-7pm

Virtual via Zoom

To register, 800.272.3900 or rmkohn@alz.org

Making a Difference in Dementia Care – FREE Education Friday May 13!!

Making a Difference in Dementia Care Our keynote speaker is Author, Caregiver, & Motivational Speaker 
Loretta Woodward Veney. She is speaking about ‘The JOY of Caregiving” 

8:00am Registration, Light Refreshments & Mingle with Community Partners (In-Person)
8:30am- Program will begin
8:30-8:45am– Introduction of Community Partners
8:45-10:00am Dementia Friends Information Session
10:00-10:10am Break
10:10- 11:30am Keynote Speaker
11:30- 12:30am Pannel Discussion  To register call 717-843-1504, email makingadifferenceindementia@gmail.com or  click on the link below! Register Here 
 Copyright © 2022 GOOD NEWS CONSULTING, Inc., All rights reserved.
We send “Chatinar” ,Webinar, workshop and other GOOD NEWS business notices to those who have subscribed

Our mailing address is:
GOOD NEWS CONSULTING, Inc.140 Roosevelt Ave. Suite 210York, PA 17401

penncares support services upcoming Trainings!

PennCares Webinar – Dimentia

Fluctuations in Working with Families of Individuals with Dementia Webinar
Tuesday, April 12, 2022, 10 a.m. to 12 p.m.
Cost: $102.00 Social Work CEUs available
This program is made possible through a grant from the Mechanicsburg Area Community Foundation, a regional foundation of The Foundation for Enhancing Communities.To register or learn more about the webinar, please click on the image below.
 
Register now
 
For a full list of upcoming webinars, please click the button below:
Upcoming Webinars
PennCares can bring this training to your area. We provide training services across the state of Pennsylvania. Contact us for pricing. Don’t see a topic you are looking for? Call or email us as we can customize your staffing needs. Please email us at: trainings@penncares.org.

ADVANCING EXCELLENCE IN PERSON-CENTERED DEMENTIA CARE

Good News Consulting, Inc. Year at a Glance

For more information or to register email info@goodnewsconsulting.com or call 717-843-1504

Some fees do apply for sessions, check out our Web Store for more details about fees

Are you a family caregiver and need additional support, click HERE for more information on how we at Good News can help.

March 2022

22- Coffee & Conversation with Rahzeb Choudbury from True Doors 8:30am-10:00am More Information

23- I am Here VIRTUAL Registration

April 2022

27th- Certified Dementia Practitioner 8:30-5:00 Virtaul * Registration

May 2022

11th- Certified Dementia Practitioner 8:30-5:00 In Person * Registration

Making a Difference in Dementia Care Save the Date

June 2022

21st- The Longest Day

July 2022

27th- Certified Dementia Practitioner 8:30-5:00 In Person * Registration

“To Keep Your Brain Young, Take Some Tips From Our Earliest Ancestors” – NPR

“Without a cure for Alzheimer’s and other forms of dementia, prevention is paramount. Habits that helped early humans thrive still make sense; a varied diet, exercise and an engaging social life.”

human evolution and alzheimers

“Reconstructions from the Daynès Studio in Paris depict a male Neanderthal (right) face to face with a human, Homo sapiens.” – Science Source

by Brett Stretka

“It’s something that many of us reckon with: the sense that we’re not quite as sharp as we once were.

“I recently turned 42. Having lost my grandfather to Alzheimer’s, and with my mom suffering from a similar neurodegenerative disease, I’m very aware of what pathologies might lurk beneath my cranium.

“In the absence of a cure for Alzheimer’s and other forms of dementia, the most important interventions for upholding brain function are preventive — those that help maintain our most marvelous, mysterious organ.

“Based on the science, I take fish oil and broil salmon. I exercise. I try to challenge my cortex to the unfamiliar.

“As I wrote my recent book, A History of the Human Brain, which recounts the evolutionary tale of how our brain got here, I began to realize that so many of the same influences that shaped our brain evolution in the first place reflect the very measures we use to preserve our cognitive function today.

“Being social, and highly communicative. ”

Continue reading this column at NPR; click here.

“FDA approves much-debated Alzheimer’s drug panned by experts” – AP

“The drug carries a warning about temporary brain swelling that can sometimes cause headaches, confusion and dizziness. Other side effects included allergic reactions, diarrhea and disorientation.”

alz medPhoto source: Pixabay

by Matthew Perrone

WASHINGTON (AP) — “Government health officials on Monday approved the first new drug for Alzheimer’s disease in nearly 20 years, disregarding warnings from independent advisers that the much-debated treatment hasn’t been shown to help slow the brain-destroying disease.

“The Food and Drug Administration approved the drug from Biogen based on study results showing it seemed ‘reasonably likely’ to benefit Alzheimer’s patients. It’s the only therapy that U.S. regulators have said can likely treat the underlying disease, rather than manage symptoms like anxiety and insomnia.

“The decision, which could impact millions of Americans and their families, is certain to spark disagreements among physicians, medical researchers and patient groups. It also has far-reaching implications for the standards used to evaluate experimental therapies, including those that show only incremental benefits.

“The new drug, which Biogen developed with Japan’s Eisai Co., did not reverse mental decline, only slowing it in one study. The medication, aducanumab, will be marketed as Aduhelm and is to be given as an infusion every four weeks.

“Dr. Caleb Alexander, an FDA adviser who recommended against the drug’s approval, said he was ‘surprised and disappointed’ by the decision.

“”The FDA gets the respect that it does because it has regulatory standards that are based on firm evidence. In this case, I think they gave the product a pass,’ said Alexander, a medical researcher at Johns Hopkins University.”

Read this article at the Associated Press in its entirety, click here.

“‘Ever Forward’ — Leeza Gibbons Talks About Caregiving” – next avenue

“How her organization is responding to burdens caregivers have been feeling, and the lessons she learned from her late mom who had Alzheimer’s”

leeza gibbons

Leezagibbons.com – caregiving videos

by Rosanne Corcoran

“I had the pleasure of meeting Leeza Gibbons through a journaling program for caregivers coordinated by Leeza’s Care Connection, her organization which offers programs, resources, strategies and support for those caring for a loved one with a chronic illness or Alzheimer’s disease. Her work has become her passion and mission.

“Leeza Gibbons might be someone you may feel like you know from her Emmy-award winning television career, her New York Times bestselling books or even from winning “The Celebrity Apprentice.” But that wasn’t the Leeza Gibbons I met. 

“The one I met was a caregiver who understood the sadness, the grief and the longing I feel in the midst of my caring for my mother who has Alzheimer’s disease, because Gibbons lost her mother in the same way. Her positivity and compassion have the ability to just make you feel better, even virtually through Zoom, as I think you’ll see in my interview with her below (it has been edited for length and clarity):”

Click here to continue reading this next avenue article.

“7 Early Warning Signs of Dementia You Shouldn’t Ignore” – AARP

“How to spot early indicators that your loved one may have Alzheimer’s or dementia.”

dementia signsISTOCK/GETTY IMAGES

by Patrick J. Kiger

“From age 50 on, it’s not unusual to have occasional trouble finding the right word or remembering where you put things.

“But persistent difficulty with memory, cognition and ability to perform everyday tasks might be signs that something more serious is happening to a loved one’s brain.

“Dementia isn’t actually a disease, according to the Mayo Clinic. It’s a catch-all term for changes in the brain that cause a loss of functioning that interferes with daily life. Dementia can diminish focus, the ability to pay attention, language skills, problem-solving and visual perception. It also can make it difficult for a person to control his or her emotions and lead to personality changes.

“More than 6 million Americans are living with Alzheimer’s dementia, according to a 2021 report by the Alzheimer’s Association. Alzheimer’s disease is the leading cause of dementia, accounting for 60 percent to 70 percent of cases, but a range of brain illnesses can lead to the condition (see sidebar, ‘Diseases that cause dementia’).”

Click here to read this article at AARP in its entirety.

“Meeting the Challenge of Caring for Persons Living with Dementia and Their Care Partners and Caregivers: A Way Forward”

dementia and caregivers

“At a time when unprecedented numbers of people are enjoying more years of life, this report of the National  Academies of Sciences, Engineering, and Medicine describing a way forward for meeting the challenges of persons  living with dementia and their care partners and caregivers could not be more timely and welcome. A previous  National Academies study addressed the evidence on interventions to prevent or slow cognitive decline and dementia.

“The committee that conducted the present study was charged with reporting on evidence regarding interventions aimed at improving care for persons living with dementia and their care partners and caregivers. Both of these reports emanated from a widely shared desire to avoid dreading living to old age rather than approaching a long life as a reward for a life well lived.

In the waning decades of the 20th century, when the research world “discovered” late-life Alzheimer’s disease and the importance of research to understand and address it, this developing field also recognized the need for quality improvement in caring for persons living with dementia, as well as their care partners and caregivers. Early advances  led to findings that essentially helped reduce harm caused by unfortunately common practices in the care of persons with late-stage dementia. Examples included use of mechanical restraining devices (as exemplified by so-called “Geri-chairs”) and chemical restraints, such as harmful overuse of antipsychotics. Today, Geri-chairs are virtually outlawed, and a recent report of the Lancet Commission documents declining use of antipsychotics. Likewise, harmful practices
designed to sustain life, such as the use of feeding tubes and some other forced-feeding techniques, have declined significantly. Yet, while these changes represent progress, they can best be viewed as harm reduction due to existing practices.

Click on the graphic to continue reading by downloading the report.

dementia caregivers