Category Archives: Alzheimer’s Disease and related disorders

“Even 1 Concussion May Raise Your Odds for Dementia Later” – HealthDay

concussion risk

by Denise Mann

“Sustaining just one head injury may up your chances of developing dementia decades later by 25%, and this risk increases with each subsequent head injury, new research suggests.

“‘Head injury is not the only risk factor for dementia as high blood pressure and diabetes, among others, also contribute significantly to dementia risk, but head injury is one risk factor for dementia that is modifiable by behavioral changes such as wearing helmets and seat belts,’ said study author Dr. Andrea Schneider. She’s an assistant professor in the neurology department at the University of Pennsylvania School of Medicine.

“Dementia is an umbrella term for a group of diseases, including Alzheimer’s disease, that affect thinking ability, memory and/or other cognitive functions.

“Exactly how head injury may lead to dementia is not fully understood yet, Schneider said.”

Click here to continue reading this article at HealthDay.

“‘Providers Don’t Even Listen’: Barriers To Alzheimer’s Care When You’re Not White” – NPR

200489720-001As a researcher at the Allen Institute for Brain Science in Seattle, Alice Mukora says she understands the need to enroll diverse populations in Alzheimer’s research. But that would be more likely to happen, she notes, if people of color had better experiences getting Alzheimer’s care.” – Siri Stafford/Getty Images

by Jon Hamilton

“Many members of racial and ethnic minority groups say they face extra barriers when seeking care for a friend or family member with Alzheimer’s disease.

“Black, Hispanic, Asian and Native American caregivers were far more likely than whites to encounter discrimination, language barriers and providers who lack cultural competence, according to a report released Tuesday by the Alzheimer’s Association.

“‘Among nonwhite caregivers, half say they’ve faced discrimination when navigating through the health care system,’ says Maria Carrillo, the association’s chief science officer. Just 17% of white caregivers reported that sort of problem.

“Black caregivers were most likely to report barriers, followed by Native American, Asian American and Hispanic caregivers.

“One major concern reported by those trying to get treatment or other support for a loved one is that ‘providers don’t even listen to what they are saying, perhaps because of their race, color or ethnicity,’ Carrillo says. ‘What they’re experiencing is actually affecting their care,’ she notes.”

Read this NPR article in its entirety, click here.

Ruth & Erica: “A free YouTube TV series is a realistic story about the struggles, fears, and sacrifices that family caregivers often face”

ruth and ericaRuth and Erica is an interesting and captivating online mini-series in abbreviated less than 10 minute episodes. The comments above are from several of the episodes.

Somehow in the middle of an internet search vortex, we came across the first episode of this captivating mini-series. It is so captivating and well acted that we wound up binge watching the entire series. Know what? We don’t feel at all guilty. The characters are brilliantly cast in a riveting slice of real life for many.

What are the dynamics of aging parents with career focused children? What about the onset of the afflictions of aging? What about the senses of loss and frustration.

Here are a few articles about the YouTube FREE mini-series:

TV show about caring for aging parents: Ruth and Erica  

Ruth & Erica – An Interesting Online Series for Caregivers

Lois Smith in The Americans and in Ruth & Erica


Here are links to the episodes in the entire mini-series. We hope you find the mni-series interesting and thought-inspiring.

 

 

 

“Tony Bennett’s Battle With Alzheimer’s” – AARP

“For four years, the legendary singer and his family have kept his secret. Now, they’re breaking their silence”

tony bennett(Larry Busacca/Getty Images)

by John Colapinto

“Part One: “It’s Just Another Gift”

“On an afternoon in early November, I arrived at Tony Bennett’s home on the 15th floor of a high-rise on the southern edge of New York City’s Central Park. The sprawling three-bedroom apartment’s wall of windows opens on a heart-stopping view of the park and floods the rooms with a steady north light — “a painter’s dream,” as Bennett once said — which matters, because as well as being one of the world’s greatest singers, he is also a serious visual artist. Over the last quarter century, he has spent untold hours in this sanctuary, a converted bedroom turned art studio where I was brought to meet him by his wife, Susan. This was clearly the space of a working artist: the walls papered with sketches, a messy table heaped with brushes and curled paint tubes, an easel by the window holding a work in progress — a black-and-white drawing of the park, the distant buildings expertly evoked with impressionistic flicks of charcoal.

“Bennett himself was seated at a desk along one wall, his chair turned toward the windows as he paged slowly through a coffee-table book open on his lap. Nattily dressed in a blue blazer over an open-collared shirt, dark slacks and white running shoes, he was, at 94, startlingly youthful in appearance and instantly recognizable: the blue, heavy-lidded eyes, the iconic Roman nose, the coiffed salt-and-pepper hair. Missing, however, was the easy, ever-present smile that helped brand him the nice-guy singing idol of his generation — more approachable than the volatile Sinatra, or the jokily “drunken” Dean Martin. Instead, his expression had a masklike impassivity that changed only slightly to dim awareness when Susan, a slim, fine-featured 54-year-old, placed a hand on his shoulder, leaned over and said: “This is John, Tone. He’s come to talk to us about the new album.” She spoke into his ear, a little loudly perhaps, in a prompting, emphatic register, as if trying to reach her husband through a barrier that had fallen between him and the rest of the world.

“Indeed she was. He looked expressionlessly into my eyes before returning wordlessly to his book.

“Tony Bennett has Alzheimer’s disease, the most common form of age-related dementia.”


“Alzheimer’s is a disease that has impacted soooooo many families and this unvarnished look at the way the legendary singer and his family are confronting the disease is refreshingly revealing. The Bennett family and AARP want to help people who might be struggling with the day-to-day challenges of the disease — and part of that help comes from encouraging people to talk about their shared experiences.

“Carve out some time in your day to read this long piece from start to finish. You’ll be glad you did.” (SOURCE: While You Were Working Smart Brief)

“Review: ‘Supernova’ is a quiet burning star of a love story” – Associated Press

supernova

by Mark Kennedy

“The actors Stanley Tucci and Colin Firth have been friends for 20 years and that is plainly evident watching them play longtime lovers in the wrenchingly beautiful film ‘Supernova.’

“The award-winning duo are like a well-worn sweater onscreen, comfortable and lived-in, showing the kind of tart affection people show when ardor’s lust has given way to the slow burn of adoration.

“In a scene early on in ‘Supernova,’ Tucci’s character asks Firth’s character how things are going. ‘It’s fine for me,’ comes the steady reply. Tucci knows better: ‘Liar,’ he says, simply.

“He’s right because the film is about impending loss: Tucci’s Tusker has early onset dementia and Firth’s Sam is thrust into the position of watching the possibility of his love outlast his lover.

“Writer-director Harry Macqueen’s script is as spare and natural as the setting — England’s Lake District, with its ancient stone walls and rolling misty green countryside. Dementia is never mentioned and referred to only obliquely, as in ‘the bloody thing.’”

Read this film review in its entirety here.


Click here to watch the trailer: https://www.youtube.com/watch?v=I4Vk0CVcDts


IMDB reviewRotten Tomatos review


“Picturing the ‘patience, love, and devotion’ of Alzheimer’s care” – STATnews

alz4My mother is feeding my father. He is no longer able to chew his food. My mother prepares mashed food for him.” – JALAL SHAMSAZARAN/NVP IMAGES

by Alissa Ambrose – photos by Jalal ShamsaZaran

“Alzheimer’s disease runs in photographer Jalal Shamsazaran’s family: his aunt, grandfather, and father, Majid, all have been diagnosed.

“So as he documented the final years of his father’s life, in Tabriz, Iran, Shamsazaran recognized his own potential future.

“’Perhaps the character and behavior of my father is a part of my character and behavior in future,’ he told STAT via a translator. ‘I can say that I am photographing myself.’

“Shamsazaran’s photographs depict grief and loss, but also show the strength and love in his family. In the photo above, Shamsazaran’s mother, Aliyeh, tightly embraces her husband during the late stage of his illness. In another, a portrait drawn by a young grandchild is placed by the elder Shamsazaran’s sleeping face — a reminder of the passage of time that a diagnosis like Alzheimer’s makes all the more apparent.”

Continue reading this article at STATnews; click here.

 

“Diseases like Alzheimer’s happen in two phases” – Futurity.org

Degenerative diseases happen in two distinct phases, according to new research.

degenerative-disease-alzheimers-parkinsons-phases-1600“‘The two phases of degeneration haven’t been previously recognized, so it hasn’t been understood, clinically, that you have two different populations of patients,’ says James McNew.” – (Credit: Leo Reynolds/Flickr)

Posted by Jade Boyd-Rice

“The researchers conducted countless experiments over more than a decade, and they’ve summarized all they’ve learned in a simple diagram they hope may change how doctors perceive and treat degenerative diseases as varied as Alzheimer’s, Parkinson’s, and muscle atrophy.

“The study in Molecular Psychiatry proposes that very different activities of protein signaling pathways that regulate basic cell functions mark the two phases.

“’We would like clinicians and other researchers to understand that the two phases of degeneration represent distinct entities, with distinct alterations in signaling pathways that have distinct effects on disease pathology,’ says Michael Stern, professor of biochemistry and cell biology in Rice University’s biosciences department.

“’In other words, we think that patients need to be treated differently depending on which phase they are in.'” – Continue reading this article at Futurity.org, click here.

 

“Having Dementia Doesn’t Mean You Can’t Vote” – The New York Times

“Yes, you can help a cognitively impaired person participate in the election. But heed these two guidelines.”

vote dementiaCredit…Christina Perry”

by Paula Span

Edward Kozlowski often told his daughter how his father had walked across Siberia to come to America.

“Born in Chicago 99 years ago, Mr. Kozlowski grew up on Midwestern farms. He left West Point during World War II to enlist in the Army Air Corps and made four flights over Europe on D-Day. A mechanical engineer, he spent much of his career at NASA and at Texas A&M.

“And throughout his adult life, Mr. Kozlowski, a registered Republican, voted in virtually every election. ‘In my family, voting was the highest honor of citizenship,’ his daughter, Judith Kozlowski, said. ‘You owed it to your country to vote; that was always the message.’

“It remains important to Mr. Kozlowski, now a resident of an independent living facility in Chevy Chase, Md. He didn’t want to vote in person this year, wary of exposure to the coronavirus, so his daughter helped him request a mail-in ballot — even though he has developed dementia.

“’Some days he’s right on the mark, sometimes he’s not,’ said Ms. Kozlowski, 68.”

Click here to read this article in its entirety at The New York Times.

SAVE THE DATE | the 2020 Alzheimer’s Disease and related disorders forum will be on November 5

11052020 alz forum

“Isolation, Disruption and Confusion: Coping With Dementia During a Pandemic” – California Healthline

 

covid dementia

Daisy Conant hasn’t been diagnosed with dementia but exhibits clear signs of memory loss. She gets frustrated reading news about the coronavirus pandemic.”

by Heidi de Marco

“GARDENA, Calif. — Daisy Conant, 91, thrives off routine.

“One of her favorites is reading the newspaper with her morning coffee. But, lately, the news surrounding the coronavirus pandemic has been more agitating than pleasurable. ‘We’re dropping like flies,’ she said one recent morning, throwing her hands up.

“’She gets fearful,’ explained her grandson Erik Hayhurst, 27. ‘I sort of have to pull her back and walk her through the facts.”’

“Conant hasn’t been diagnosed with dementia, but her family has a history of Alzheimer’s. She had been living independently in her home of 60 years, but Hayhurst decided to move in with her in 2018 after she showed clear signs of memory loss and fell repeatedly.

“For a while, Conant remained active, meeting up with friends and neighbors to walk around her neighborhood, attend church and visit the corner market. Hayhurst, a project management consultant, juggled caregiving with his job.

“Then COVID-19 came … ”

To continue reading this article at California Healthline, click here.