“Contributing factors: health inequity, discrimination and lack of cultural competency”
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by Rochaun Meadows-Fernandez
“Jodi Savage was her grandmother’s caretaker in her last days. Like many black Americans, her grandmother’s cultural beliefs and religious background led to very little discussion around the end of life. Culturally speaking, black Americans on the whole tend to avoid discussing end-of-life topics for fear of speaking things into existence. Focus is placed on making the best of the time you’re given. A lack of cultural competency from physicians led to a misunderstanding of Savage’s grandmother’s needs and minimal support through the death-planning process. Savage endured all of this while trying to remain strong as her grandmother battled Alzheimer’s.
“Savage wasn’t prepared for the process of making such impactful decisions on her grandmother’s behalf. No one assisted her with end-of-life planning during the process of caretaking, and she didn’t discuss end-of-life care until the night before her grandmother died.”
Part of the LIVING TO THE END OF LIFE SPECIAL REPORT
(Editor’s note: This content is provided by The John A. Hartford Foundation, a Next Avenue sponsor.)