Category Archives: Caregiving

“More Than Memory: Coping With The Other Ills Of Alzheimer’s” – NPR

“many of the symptoms he experiences have clear links to the disease — things like rage, paranoia, depression and incontinence.”

alzheimers changesGreg O’Brien and his wife, Mary Catherine, recently celebrated their 40th wedding anniversary. Both say the disease has changed their marriage. – Amanda Kowalski for NPR

by Rebecca Hersher

“The first problem with the airplane bathroom was its location.

“It was March. Greg O’Brien and his wife, Mary Catherine, were flying back to Boston from Los Angeles, sitting in economy seats in the middle of the plane. ‘We’re halfway, probably over Chicago,’ Greg remembers, “and Mary Catherine said, “Go to the bathroom.”’

‘It just sounded like my mother,’ Greg says. So I said ‘no.’

“Mary Catherine persisted, urging her husband of 40 years to use the restroom. People started looking at them. ‘It was kind of funny,’ says Greg.

“Mary Catherine was more alarmed than amused.”

Read this NPR article in its entirety here.

Link partners increase in each Service Area 13 County

NEW LINK PARTNERS

During the past month, the Pennsylvania Link to Aging and Disability Resources’ Berks – Lancaster – Lebanon Service Area continued to expand its partners’ network in each county.

These are new partners in the Berks County Partners Network:

See the complete list of partners for each county:

If you are an agency, entity or organization that provides services for persons age 60 and over; persons with a disability; veterans; family members and caregivers, consider aligning with one or more of these counties as a partner with the Pennsylvania Link to Aging and Disability Resources, contact us for information. There are no fees or charges to be a Link partner.

Call or text 717.380.9714 or email blllink@mail.com to let us know you want to become a Link partner.

 

Friday Wrap-Up, June 2, 2017 | a message from the Secretary of Aging, including Pennsylvania’s CARE Act.

Each week the Office of the Secretary of Pennsylvania’s Department of Aging releases a Friday newsletter with information relevant to activities, issues and events for older Pennsylvanians and persons with disabilities across the Commonwealth.

And the Secretary’s lead item in this week’s “Wrap-Up” is “Pennsylvania’s passage of the Caregiver, Advise, Record, Enable (CARE) Act.”

Click here to download the newsletter as a .pdf file.

The Secretary notes “AARP Pennsylvania has developed a cut out card that can be folded around your insurance card to keep in your wallet or purse. This way you will have valuable information about this new law at your fingertips should you need it.”

“What the Future of Caregiving Looks Like” – next avenue

by Denise Logeland

“Here’s what to expect in 5 years, 10 years and the ‘Jetsons’ future”

future

“Expect a caregiving environment rich in technology in the not-so-distant future. But along with that, there’ll be an emphasis on human connection to counter the devastating health effects of social isolation on older people.

“This month, we’ve been marking the fifth anniversary of Next Avenue, but not with a look back. Instead, we’ve been trying to peer into the future for people 50 and older. We wanted learn how everything will change — or not: living, learning, work, personal finance, health and now caregiving.

“We received help on the caregiving front from three experts who have an eye on trends.

“Demographically, we’ll be facing hard realities in the next five to 10 years, says Ken Dychtwald, founder and CEO of the research and consulting firm AgeWave, and a 2016 Next Avenue Influencer in Aging.”

Continue reading this next avenue article here.

June is PTSD Awareness Month

Take the mystery out of PTSD: learn what it is, who is affected, and how treatment can help. Find out if you or a loved one has PTSD, and discover ways to get help.june is ptsd awareness month

Raise PTSD_Awareness

National Center for PTSD

“Extreme Heat Message and Precautions | Be Informed, Make a Plan, Build a Kit, Get Involved” – Administration for Community Living

go kit

Summer is almost here. While we prepare to enjoy the warm weather, it’s important to take precautions in case extreme heat strikes.

By evaluating your needs, you can plan for any heat related situation.

The following steps will prepare you to handle periods of extreme heat and the associated risks:

  • Consider how potential power outages during periods of extreme heat might affect you. Plan to be temporarily self-sufficient if the electricity goes out. It’s possible that you will not have access to a medical facility or a pharmacy.
  • Identify the resources you use on a daily basis and what you can do if they are limited or not available. Make provisions for medications that require refrigeration, and plan arrangements to get to a cooling center, if needed.
  • Think about what you need to maintain your health, safety, and independence. Build A Kit that includes any specialized items such as extra wheelchair batteries, oxygen, catheters, and medication. Also include non-perishable food and water, items for service animals and pets, a cooler, and anything else you might need.
  • Check on family, friends, and neighbors who do not have air conditioning, especially those who spend much of their time alone, or are more likely to be affected by extreme heat.
  • Be watchful for signs of heat stroke and dehydration. These include shallow breathing, a lack of perspiration, dizziness, dry mouth, and headaches.

The HHS emPOWER Map 2.0 features the monthly total of Medicare beneficiaries with electricity-dependent equipment claims at the U.S. state, territory, county, and zip code level to identify the areas and populations that may be impacted and at risk for prolonged power outages.

For more information about extreme heat preparedness and tools, go to ready.gov/heat and cdc.gov.

SOURCE: Administration for Community Living

Friday Wrap-Up, May 19, 2017 | a message from the Secretary of Aging

Each week the Office of the Secretary of Pennsylvania’s Department of Aging releases a Friday newsletter with information relevant to activities, issues and events for older Pennsylvanians and persons with disabilities across the Commonwealth.

NOTE: See this notice in the newsletter about a “seed grant of $15,000 and ongoing technical assistance to create or expand support services to grandparents and other relatives raising children. Any not-for-profit organization can apply for the program, including aging service providers, county agencies, and health care providers. June 15 application due date.”

Click here to download the newsletter as a .pdf file.

“Severe Shortage Of Home Health Workers Robs Thousands Of Proper Care” – Kaiser Health News

caregiver shortageRenzo Viscardi (center), pictured with his parents, Anthony Viscardi and Cheryl Dougan, relies on round-the-clock care from home health aides. (Courtesy of Cheryl Dougan)

by Judith Graham

“Acute shortages of home health aides and nursing assistants are cropping up across the country, threatening care for people with serious disabilities and vulnerable older adults.

“In Minnesota and Wisconsin, nursing homes have denied admission to thousands of patients over the past year because they lack essential staff, according to local long-term care associations.

“In New York, patients living in rural areas have been injured, soiled themselves and gone without meals because paid caregivers aren’t available, according to testimony provided to the state Assembly’s health committee in February.

“In Illinois, the independence of people with severe developmental disabilities is being compromised … ”

Click here to read this Kaiser Health News article in its entirety.

Vicki Hoak, chief executive officer of the Pennsylvania Homecare Association reinforced the issues in this article in her presentation at the May 18 Lancaster County 50+ EXPO. She is the cross-training presenter at the Lebanon County Link partners’ cross-training meeting on June 2.

  • 02 June 2017 – Pennsylvania Homecare Association, Vicki Hoak and Ames Home Services, Bill Ames – This meeting will be held at Ames Home Services, 240 Hinkle Road, Annville, PA 17003.

“Understanding depression | Caregiver: get the facts” – SAMHSA

understanding depression

Click on the graphic to download this important information.

“How to Grandparent a Special Needs Child” – next avenue

by Kate Swenson

“I called you today, Mom and Dad. You knew today was the day. The day of the appointment. The appointment that would either relieve all our fears or change the future. You knew the doctors and teachers were throwing around words like ‘autistic’ and ‘developmentally delayed.’ You knew I refused to believe it. You refused, too (and I appreciate that more than you will ever know).

“Our Family Was Changed Forever

“”We told each other for a long time that he was fine. We reassured each other daily. He was definitely a late talker, possibly even a late bloomer. We found comfort in the fact that boys often develop slower than girls. We shared stories of other toddlers who flapped their arms and lined up toys (which often are early signs of autism) and turned out fine. But yet, our hopes were wavering. The doubt was building.

“We got the answer today.”

Click here to read this next avenue article in its entirety.